Deborah Lupton, Centenary Research Professor, News & Media Research Centre,
Faculty of Arts & Design, University of Canberra
Dr Steve Hambleton, MBBS FAMA FRACGP (hon) GAICD - NEHTA Chair
Richard Royle, Executive Director, UnitingCare Health
Leanne Wells, CEO, Consumer Health Forum
Susi Tegen, Chief Executive, Medical Technology Association of Australia (MTAA)
We’re undergoing incredible worldwide advancements in healthcare treatment, patient management, and evidence-based delivery of care. This is due, in part, to new ways of accessing and analysing patient data collected through digital platforms.
Undeniably, access to data is critical for healthcare providers, clinical research and the pharmaceutical industry. But new players are starting to gather new data, manage and mediate this information, and use existing data in new ways. Examples include:
- the Australian Government’s Personally Controlled Electronic Health Record (with similar initiatives occurring internationally),
- health insurance wellness incentive programs,
- new medical devices; or
- application/device manufacturers such as Apple and Google.
Alongside reports of data breaches and inappropriate use of collected information, from health organisations and the general digital environment, patients are beginning to question: who should have access to their data and will it be used for good?
Deborah Lupton | Dr Steve Hambleton | Leanne Wells | Richard Royle | Susi Tegen